Feeling helpless in A&E

After two infusions bags of potassium my Nottingham team requested another blood test to see where my levels were at and we were astonished to learn that they were still low and I'd need further urgent infusions. I packaged a bag, grabbed some catheters and jumped in the car expecting to have another bag and come home. I was soon admitted to the am...

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Bringing the Easter cheer to hospital!

  I'm hoping the Easter bunny will bring me some extra potassium so I can stay home this bank holiday weekend! 🐣We're always trying to make the 8hour infusions a bit more fun, so when mum found a pair of bunny ears it seemed only fitting to wear them for my infusion. Me and Spud spent the morning playing pro Easter bunnies, planning an eg...

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Back in the place I was trying to desperately to avoid

It's the first time I've felt really vulnerable since being discharged from Nottingham last week. My potassium infusion was due and with it being classed an emergency due to low levels t(as always) it wasn't as option to skip or postpone. Going without my infusion and staying at home on lockdown (given how dangerous low potassium levels are) would ...

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The new normal it seems!‍️

I'm slowly adjusting to the changes we are all making to everyday life so far. It feels unfamiliar, strange and worrying- but with the reason behind these measures it is so necessary and important. I tried to get my Find A Way Not An Excuse head on (as I like to call it when I need to stop moping around!) yesterday I began to structure my days a li...

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A whirlwind past few days!

 I had my regular 'Duracell bunny recharge' (as we like to call it) of an 8hour potassium infusion on Friday to keep me going. Still pulling through the side effects and symptoms of the IV drip that really mess with my already weak heart. A few tears from the pain in my chest and dizziness whilst hacking Daisy out on Saturday, but all for a go...

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